tag:blogger.com,1999:blog-7856549333661981829.post1658545409410771908..comments2020-04-26T17:56:57.920-07:00Comments on Lupus Lemon-Aid: Invisible Illness WeekLemon-Aidhttp://www.blogger.com/profile/08823677168311655083noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-7856549333661981829.post-58941373987396370772011-09-22T17:19:54.514-07:002011-09-22T17:19:54.514-07:00Fabulous blog...congrats to you all for getting it...Fabulous blog...congrats to you all for getting it together (special hug for Joanna!)Chrisyhttps://www.blogger.com/profile/01954004833710064612noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-59370897505143705532011-09-22T13:18:56.131-07:002011-09-22T13:18:56.131-07:00I don't have lupus but I spent a lot of time w...I don't have lupus but I spent a lot of time worrying that if I went into a PhD program, I would get it. See, a friend of the family went back to grad school in his middle years, got his PhD and was hired as a prof at Pitt--and then was diagnosed with lupus. I decided to tempt fate and do my PhD--maybe the fact that I never finished it has something to do with my current lupus-free state. <br /><br />(Joanna, you know me and my sense of humor, so I feel relatively comfortable with this incredibly non-PC comment. Sorta...)Jane Gassnerhttp://midlifebloggers.comnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-51058779856621306152011-09-19T17:55:17.318-07:002011-09-19T17:55:17.318-07:00What a beautiful job you did explaining this hidde...What a beautiful job you did explaining this hidden disease. I've worked with coworkers at school with Lupus. You my friend have an excellent attitude.<br /><br />God bless and enjoy the new blog! :o)Nezzy (Cow Patty Surprise)https://www.blogger.com/profile/10175389676508928061noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-40600726678056411132011-09-19T06:38:42.498-07:002011-09-19T06:38:42.498-07:00You did a wonderful job of creating this blog and ...You did a wonderful job of creating this blog and for sharing this invisible (especially in the blog world) illness. You are a true gem.Hilaryhttps://www.blogger.com/profile/12787493532006658679noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-78243989415695257312011-09-18T09:44:29.167-07:002011-09-18T09:44:29.167-07:00Hi and thanks for stopping by my blog! I hope you...Hi and thanks for stopping by my blog! I hope you keep writing about living with lupus, as you have a talent for combining truth and humor ... Looking forward to reading more. Take care!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-40831008334156348382011-09-18T07:34:04.309-07:002011-09-18T07:34:04.309-07:00Joanna, you did a beautiful job with the blog. I l...Joanna, you did a beautiful job with the blog. I love the header design. I knew you had Lupus, now I know more about it. As one with an Invisible Illness I can so relate to you on so much of what you said. great work at helping through your illness. hugs to you dear friend.Cindy https://www.blogger.com/profile/03552572705763406197noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-53851829482671391092011-09-18T05:03:03.187-07:002011-09-18T05:03:03.187-07:00You are THE perfect person to help with this blo...You are THE perfect person to help with this blog, not just because you have lupus but because of your way of looking at life and your wonderful writing skills.<br />I had a rhumatologist diagnose me with lupus and Reynauds several years ago and then 6 months later he decided that was not what I have. So I live "undiagnosed" with that is called idiopathic neutropenia. And some new addition to that and my cold urticaria is necrobosis lipodica. I can't remember the name so I have it written down and carry it in my billfold. It is supposed to be a condition of people with diabetis, but I don't have any problems with my sugar. And the Dr didn't believe me when I told him my first "spot" on my skin of this condition was a mosquito bite that wouldn't go away. And where I had major shoulder surgery. NO ONE believed that it could be triggered by a scar or a mosquito bite. But I've shown a mosquito bite to hubby that hasn't gone away (got it this summer) and I can tell it is going to turn into one of those spots. The one on my arm, which started out as a mosquito bite, is now the size of a nickel and pretty ugly looking! I know this isn't a blog for undiagnosed people to come to, but thought I would share any-hoo!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-73930733888617232862011-09-17T20:25:59.995-07:002011-09-17T20:25:59.995-07:00Lovely post Joanna, and I like the design and the ...Lovely post Joanna, and I like the design and the lemons.Christinehttps://www.blogger.com/profile/15720030744345215307noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-33459708599437260162011-09-17T18:53:08.431-07:002011-09-17T18:53:08.431-07:00You have done a great job! Love everything!You have done a great job! Love everything!gaylehttps://www.blogger.com/profile/00894920637532415315noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-75811011899011912932011-09-17T17:02:52.294-07:002011-09-17T17:02:52.294-07:00You did a great job with this blog, Joanna. As bus...You did a great job with this blog, Joanna. As busy as you have been the past few months I know that creating this blog was a labor of love. Your heart is gigantic.CiCihttps://www.blogger.com/profile/08615265608675467505noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-41951959164668447712011-09-17T08:07:28.358-07:002011-09-17T08:07:28.358-07:00Lots of good things in this post. I also love the...Lots of good things in this post. I also love the header. Great job.Anonymoushttps://www.blogger.com/profile/03803472040500529682noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-24733104129797048252011-09-17T04:25:30.072-07:002011-09-17T04:25:30.072-07:00This was thoughtful and informative, but it peeled...This was thoughtful and informative, but it peeled away some of the layers of fear most of us have when we think of chronic diseases.<br /><br />You are an old soul, Joanna, as evidenced by the wisdom your writings continue to offer. I love the design of the blog. I like a blog that feels light and roomy - as if I could sit back and put my feet up for a spell. And I'm so happy they got you involved. xoPeople Who Know Me Would Say:https://www.blogger.com/profile/04621641188403948733noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-86950299157045363812011-09-16T21:45:01.538-07:002011-09-16T21:45:01.538-07:00Thank you for your witty information about Lupus.
...Thank you for your witty information about Lupus.<br /><br />And I do like this blog design a lot - it's simple and light and easy to read! Very appealing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-39364383125653945492011-09-16T19:18:38.713-07:002011-09-16T19:18:38.713-07:00Thank you for sharing with us. This is good infor...Thank you for sharing with us. This is good information to know. It is interesting that this disease does effect many people and yet, there isn't a lot of publicity about it, at all.Sharon Rosehttps://www.blogger.com/profile/00695395104518983907noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-58610681463613789482011-09-16T16:16:34.949-07:002011-09-16T16:16:34.949-07:00Very thoughtful and positive....and very enlighten...Very thoughtful and positive....and very enlightening.Jeaniehttps://www.blogger.com/profile/04810126999695733332noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-5126059187209724462011-09-16T12:53:22.455-07:002011-09-16T12:53:22.455-07:00JJ great post and I learned so much. I'm fortu...JJ great post and I learned so much. I'm fortunate to not know anyone besides you that is with this illness....my heart goes out to you. I thank you for educating us all. I have another blogger pal with RA another invisible illness It's been an eye opening week for me. Best to you my friend. xoFormerly known as Frauhttps://www.blogger.com/profile/12798890008067408048noreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-32650404291218916852011-09-15T21:31:59.833-07:002011-09-15T21:31:59.833-07:00Hi Joanna, thanks for stopping by my blog for Invi...Hi Joanna, thanks for stopping by my blog for Invisible Illness Week and taking the time to read my 30 Things.<br /><br />I enjoyed reading your 30 Things and getting to know you a bit. I can identify with number 23. It bugs me when people tell me how I am feeling based on how I look. It seems that half they time they are wrong and then I feel like I have to defend myself and why I look well or look tired.<br /><br />Warm Wishes, Hugs, and a few extra Spoons,<br />RachelRachel Lundyhttp://www.cranberryteatime.comnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-90851225344194388122011-09-15T15:17:37.245-07:002011-09-15T15:17:37.245-07:00Hi Joanne! They have still not ruled OUT lupus on...Hi Joanne! They have still not ruled OUT lupus on me but suffice, I have several auto-immune issues. Once you have one, you might as well say you have them all. Most are treated the same, act very similar if not the same and create the same tormet and acceptance for the patient. I'm glad to see your blogging about this and you showing up for IIW. It's important to not let others turn their back on the diseases amongst us. We are people too and we just want the same thing others want, to feel good. Hugs and come join my GIVEAWAY... maybe you'll win. TammyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7856549333661981829.post-8750853353414655272011-09-15T09:54:38.023-07:002011-09-15T09:54:38.023-07:00You certainly have a lot to deal with and it's...You certainly have a lot to deal with and it's hard for those of us you are relatively healthy to imagine. The bit of pain I have due to arthritis is miniscule compared to what you face. The instance of autoimmune diseases and asthma seem to be quickly increasing. Autoimmune diseases are something I never heard much about 30-40 years ago. I feel the increase has a lot to do with tighter homes and indoor bathrooms...we are just too clean for our own good!Marisa @ getting Back To Basicshttp://marjean-gettingbacktobasics.blogspot.com/noreply@blogger.com